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Monday, November 27, 2006

Aspergers Tick by Pediatrician

We attended our long awaited Pediatrician appointment today. After talking to me and reading all the other reports, the Doctor agreed that boy child is indeed Aspergers. The Doctor did qualify though that on initial meeting he would not have classified child as belonging on the Autism Spectrum of Disorders.

I guess that is part of the confusion with Aspergers: the children present so wonderfully in some situations. Boy is fantastic in very small groups and gets on extremely well with adults. On some days, he is the perfect child, on others he is like Heathcliff from Wuthering Heights.

Even though today is a home school day (we were going to finish off Eragon) I have opted to not push boy to do any school work related tasks. The Doctor made Boy do some spelling, sums and drawing of shapes. Boy is cluey – he knew that the Doctor was assessing his capability. This usually triggers a melt down when Boy thinks that others think he is dumb. There was no melt down this morning and nor do I want one this afternoon.

Boy is now happily playing World of War Craft and exceeding in upward level movement. If only boy could refocus his Asperger’s obsessive co-morbid game state to vacuuming the floor for me!

I am so tired after the two hour Doctor’s assessment this morning that I could go to bed now (3pm) and sleep until tomorrow morning. But…because I am home schooling two days per week, I have fully booked myself for the next three days. That means having clients in my home, and a need for a clean environment.

Bugger! There is just no rest for the wicked; or for the mother of a child with Aspergers.

You know somedays I feel so alone and tired, just like it is only me and the never ending ocean of Aspergers. Other days I am so positive and on top of everything. Am I alone in feeling this fatigue or do other parents of children with Aspergers also feel it?


Kris said...

For sure, other parents feel this exhaustion, coupled with high hopes, with our Aspergers children. I certainly do. You are not alone! In fact, part of the reason I stopped on your site was because of this frustration, and wondering if I should home school my 10 year old. I LOVE this boy, he is just the sweetest kid, but I am constantly wondering if I'm doing everything I can do to make sure he has a happy future ahead of him, and a good and appropriate education. When you find all the answers, please let me know!


Megan Bayliss said...

Hi Kris
Thanks for your comment and support. It is great to know that I am not alone in my frustration and heart breaking decisions to home school. We now know we are totally doing the right thing for our son.
Isn't it funny how we beat ourselves up wondering if we are doing the right thing for our kids. Surely we should also trust our instincts and educate our kids in an environment they are comfortable in.
Thank you so much for sharing your frustration. A problem shared is a problem halved.
Merry Christmas.

This blog is no longer kept. I am instead blogging only to Imaginif Child Protection became Serious Business